An ACTH assay’s accuracy became so concerning that it warranted a paper in the Journal of the Endocrine Society that detailed five separate cases. Raising awareness of this rare but serious issue can avoid misdiagnoses that put patients in peril. This past April, an article appeared in the Journal of the Endocrine Society titled, “Assay-Specific...
Case Study Illuminates Adrenocortical Carcinoma’s Association with Lynch Syndrome
Adrenocortical carcinoma (ACC) can be the only manifestation in patients with Lynch syndrome – which is already associated with a higher risk of colorectal cancer and endometrial cancer – according to a paper recently published in the Journal of the Endocrine Society. Researchers led by Irina Bancos, MD, of the Mayo Clinic in Rochester, Minn., point...
With a brutal five-year survival rate below 40%, adrenocortical carcinoma is not only rare, it is also somewhat misunderstood. New research may shed light on this condition and even provide a path to future treatment options. Adrenocortical carcinoma (ACC) is an aggressive orphan malignancy that confers a less than 35% survival rate at five years....
Adrenal Clock May Help Maintain Circadian Rhythms During Chronic Aberrant Light Exposure
A recent animal model shows that the adrenal clock may help stabilize the circadian glucocorticoid rhythm in response to chronic exposure to aberrant light cycles, according to a study recently published in Endocrinology. Researchers led by William C. Engeland, PhD, of the Department of Neuroscience at the University of Minnesota in Minneapolis, point out that...
Endocrine Society’s Clinical Practice Guideline offers diagnosis, treatment recommendations The Endocrine Society today issued a Clinical Practice Guideline that offers best practices for healthcare providers on how to promptly diagnose, treat, and manage patients with congenital adrenal hyperplasia (CAH), an inherited endocrine disorder, throughout their entire lives. The guideline, titled “Congenital Adrenal Hyperplasia Due to...
Getting the ACT Together: Tumor Database Improves Pediatric Care
The International Pediatric Adrenocortical Tumor Registry is a database for young patients afflicted with these rare tumors. The result has created more personalized and targeted care as well as benefited the patient’s families and their physicians. Last October, the Journal of Clinical Oncology published a paper that described the clinical features and outcomes in children with...Heir on the Side of Caution: How a Von Hippel-Lindau Patient Is Managing Her Health
In the two decades since Stacy Lloyd was diagnosed with Von Hippel-Lindau, much has changed in genetic research, treatment, and counseling methods. Despite a complicated healthcare system, new methods are evolving constantly to treat, diagnose, and maybe even prevent this rare and often debilitating genetic disorder. The morning of June 28, 1996, Stacy Lloyd –...
The U.S. Food and Drug Administration this week approved iobenguane I 131 injection for intravenous use for the treatment of adults and adolescents age 12 and older with rare tumors of the adrenal gland (pheochromocytoma or paraganglioma) that cannot be surgically removed (unresectable), have spread beyond the original tumor site, and require systemic anticancer therapy....
Adrenal Disorders And Adrenal Cancer Information
Though rare, affecting around 200 people per year, adrenal cancer is no less devastating when a family faces a diagnosis. Because it’s so rare, getting access to the right information and treatment is challenging. It’s not uncommon for a patient with this diagnosis to find that his or her doctor has never faced adrenal cancer before. For that reason, a trusted resource for accurate and timely information is critical to the modern endocrinology practice.
In addition, benign adrenal tumors, which affect one out of every 10 people who have an imaging test done of the adrenal gland, can have serious health effects. To help doctors and patients understand adrenal diseases, including tumors and cancers, Endocrine News has collected a number of recent and relevant articles on the topic on this page. For the information you need about adrenal disease, bookmark this page and refer to it on a regular basis.
Clinical Trials and Recent Research Studies
For doctors to make informed decisions for their patients about adrenal disorders, they need accurate information about the most recent research studies and clinical trials. Sometimes, accessing that information is not easy, especially for rare disorders and diseases. Endocrine News brings all of that research into one place, providing the data you need to make the right decisions for your practice and your patients.
Providing Hope for Adrenal Cancer Patients
For patients who have been diagnosed with adrenal cancer, this page will provide a measure of hope by offering insight into adrenal cancer treatments. Since only about 200 patients are diagnosed with this particular disease each year, endocrinologists are often unprepared to treat it. Here, however, doctors and patients can find information about what treatment options are available. Research about new, promising treatments will also be posted here as it comes available, providing hope to patients and doctors alike.
