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Making Progress: Breakthroughs in Adrenocortical Carcinoma

With a brutal five-year survival rate below 40%, adrenocortical carcinoma is not only rare, it is also somewhat misunderstood. New research may shed light on this condition and even provide a path to future treatment options. Adrenocortical carcinoma (ACC) is an aggressive orphan malignancy that confers a less than 35% survival rate at five years....
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Managing Congenital Adrenal Hyperplasia Requires Shared Decisions among Patients, Families, and Healthcare Providers

Endocrine Society’s Clinical Practice Guideline offers diagnosis, treatment recommendations The Endocrine Society today issued a Clinical Practice Guideline that offers best practices for healthcare providers on how to promptly diagnose, treat, and manage patients with congenital adrenal hyperplasia (CAH), an inherited endocrine disorder, throughout their entire lives. The guideline, titled “Congenital Adrenal Hyperplasia Due to...
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Getting the ACT Together: Tumor Database Improves Pediatric Care

stjude_fiftyfacts_625px The International Pediatric Adrenocortical Tumor Registry is a database for young patients afflicted with these rare tumors. The result has created more personalized and targeted care as well as benefited the patient’s families and their physicians. Last October, the Journal of Clinical Oncology published a paper that described the clinical features and outcomes in children with...
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FDA Approves First Treatment for Rare Adrenal Tumors

The U.S. Food and Drug Administration this week approved iobenguane I 131 injection for intravenous use for the treatment of adults and adolescents age 12 and older with rare tumors of the adrenal gland (pheochromocytoma or paraganglioma) that cannot be surgically removed (unresectable), have spread beyond the original tumor site, and require systemic anticancer therapy....
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Clinical Features and Outcomes in Children with Adrenocortical Tumors without Germline TP53 Mutations Described

Researchers have described clinical features and outcomes in children with adrenocortical tumors (ACTs) without germline TP53 mutations, according to a study recently published in the Journal of Clinical Oncology. Emilia Modolo Pinto, PhD, Raul C. Ribeiro, MD, and colleagues of St. Jude Children’s Research Hospital in Memphis, Tenn., point out that ACTs are cancers caused...

Adrenal Disorders And Adrenal Cancer Information

Though rare, affecting around 200 people per year, adrenal cancer is no less devastating when a family faces a diagnosis. Because it’s so rare, getting access to the right information and treatment is challenging. It’s not uncommon for a patient with this diagnosis to find that his or her doctor has never faced adrenal cancer before. For that reason, a trusted resource for accurate and timely information is critical to the modern endocrinology practice.

In addition, benign adrenal tumors, which affect one out of every 10 people who have an imaging test done of the adrenal gland, can have serious health effects. To help doctors and patients understand adrenal diseases, including tumors and cancers, Endocrine News has collected a number of recent and relevant articles on the topic on this page. For the information you need about adrenal disease, bookmark this page and refer to it on a regular basis.

Clinical Trials and Recent Research Studies

For doctors to make informed decisions for their patients about adrenal disorders, they need accurate information about the most recent research studies and clinical trials. Sometimes, accessing that information is not easy, especially for rare disorders and diseases. Endocrine News brings all of that research into one place, providing the data you need to make the right decisions for your practice and your patients.

 Providing Hope for Adrenal Cancer Patients

For patients who have been diagnosed with adrenal cancer, this page will provide a measure of hope by offering insight into adrenal cancer treatments. Since only about 200 patients are diagnosed with this particular disease each year, endocrinologists are often unprepared to treat it. Here, however, doctors and patients can find information about what treatment options are available. Research about new, promising treatments will also be posted here as it comes available, providing hope to patients and doctors alike.