Cover Story
Heir on the Side of Caution: How a Von Hippel-Lindau Patient Is Managing Her Health
In the two decades since Stacy Lloyd was diagnosed with Von Hippel-Lindau, much has changed in genetic research, treatment, and counseling methods. Despite a complicated healthcare system,...
Features
Getting the ACT Together: Tumor Database Improves Pediatric Care
The International Pediatric Adrenocortical Tumor Registry is a database for young patients afflicted with these rare tumors. The result has created more personalized and targeted care as well a...
